{"id":23667,"date":"2023-02-28T10:17:31","date_gmt":"2023-02-28T10:17:31","guid":{"rendered":"https:\/\/touchrespiratory.com\/?post_type=media_gallery&#038;p=23667"},"modified":"2023-02-28T10:17:31","modified_gmt":"2023-02-28T10:17:31","slug":"lisa-sarfaty-exploring-and-addressing-inequities-in-rare-diseases","status":"publish","type":"media_gallery","link":"https:\/\/touchrespiratory.com\/airway-diseases\/conference-hub\/lisa-sarfaty-exploring-and-addressing-inequities-in-rare-diseases\/","title":{"rendered":"Lisa Sarfaty: Exploring and addressing inequities in rare diseases"},"content":{"rendered":"<p><span style=\"font-weight: 400\">Rare diseases can present numerous challenges for those living with these conditions and the healthcare professionals caring for them. In this interview we discuss some of these with <\/span><b>Lisa Sarfaty<\/b><span style=\"font-weight: 400\">, VP of Communication and Engagement for NORD (The National Organization for Rare Disorders) and explore ways in which they could be tackled.\u00a0<\/span><\/p>\n<p><b>Questions<\/b><\/p>\n<ol>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Could you tell us a little about the inequities surrounding living with a rare condition? (0:18)<\/span><\/li>\n<li style=\"font-weight: 400\"><span style=\"font-weight: 400\">What systemic changes do you think are needed to address these and generate change? (3:02)<\/span><\/li>\n<\/ol>\n<p><span style=\"font-weight: 400\">We hope that this conversation can continue our work to help support the rare disease community, increase awareness and improve understanding.<\/span><\/p>\n<p><b>Disclosures:<\/b><span style=\"font-weight: 400\"> Lisa Sarfaty has nothing to disclose in relation to this video interview.<\/span><\/p>\n<p><b>Support:<\/b><span style=\"font-weight: 400\"> Interview and filming supported by Touch Medical Media Ltd. Interview conducted by Gina Furnival.<\/span><\/p>\n<p><span style=\"font-weight: 400\">Additional resources<\/span><\/p>\n<p><a href=\"http:\/\/rarediseaseday.org\" target=\"_blank\" rel=\"noopener\"><span style=\"font-weight: 400\">rarediseaseday.org<\/span><\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Rare diseases can present numerous challenges for those living with these conditions and the healthcare professionals caring for them. In this interview we discuss some of these with Lisa Sarfaty, VP of Communication and Engagement for NORD (The National Organization for Rare Disorders) and explore ways in which they could be tackled.\u00a0 Questions Could you [&hellip;]<\/p>\n","protected":false},"featured_media":23652,"template":"","class_list":["post-23667","media_gallery","type-media_gallery","status-publish","has-post-thumbnail","hentry","vocabulary_1-airway-diseases"],"acf":[],"_links":{"self":[{"href":"https:\/\/touchrespiratory.com\/wp-json\/wp\/v2\/media_gallery\/23667","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/touchrespiratory.com\/wp-json\/wp\/v2\/media_gallery"}],"about":[{"href":"https:\/\/touchrespiratory.com\/wp-json\/wp\/v2\/types\/media_gallery"}],"version-history":[{"count":2,"href":"https:\/\/touchrespiratory.com\/wp-json\/wp\/v2\/media_gallery\/23667\/revisions"}],"predecessor-version":[{"id":23677,"href":"https:\/\/touchrespiratory.com\/wp-json\/wp\/v2\/media_gallery\/23667\/revisions\/23677"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/touchrespiratory.com\/wp-json\/wp\/v2\/media\/23652"}],"wp:attachment":[{"href":"https:\/\/touchrespiratory.com\/wp-json\/wp\/v2\/media?parent=23667"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}